“No Quality of Life” — It can Happen to Anyone.

The Title :

“No quality of life:’ Halifax woman with rare disease paying $60,000 for U.S. surgery”

Please read this story if you have read that you have “Tarlov Cysts” on your MRI report, and your back pain is worsening.  You admit that you are noticing such things happening to you such as the fact that you cannot sit for long periods without feeling like you are sitting on a rock.  It hurts to bend down, twist, stretch, or lift even a half-gallon of milk. 

It is not likely you will find ANY doctor in NE Ohio, or indeed in the entire state of Ohio, who will explain to you what it means to have symptomatic Tarlov Cysts.  But, they will tell you that they do not operate on them.  

Please join several Tarlov Cyst Facebook Groups and read the posts and ask questions – and lots of them!  You will receive a more well-rounded education from other members who are willing to share their journey, and who also suffer from this debilitating disease.  

I personally feel that any Tarlov Cysts are like ticking time bombs in our bodies even if they do not initially present with pain.  Having one fall or being in one auto accident can change it all for a person. 

Please be your own advocate no matter where you live.  The doctors may turn away from you, but those who are also suffering from this horrid chronic pain disease will not.

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Don’t Overlook that Unlikely Newspaper for Anecdotes about Your Ancestors

I already had the unusual photo of my 2nd cousin (twice removed), Ellza Limes, with the squirrels perched on his arms that I acquired some years ago.  So when I “bumped into” the little article about him (even though his first name was misspelled in the newspaper) while searching for stories on my father and grandfather who lived in Lorain County, I thought how neat that the little story is about one of my more colorful distant ancestors — and his pet squirrels, apparently dozens of them as I just learned!  

Of course, this was not the type of information I expected to find in an Elyria, Lorain County, Ohio newspaper knowing he had lived his whole life in the small village of Ridgeway, in Hardin County, Ohio.  

The experience confirms for me that human interest stories about our ancestors exists in places we might easily overlook.  Yet, if we follow that “little voice from within” we are led to them.  

Often the accounts are little more than anecdotes, such as this one is, but whatever their content, we instinctively treasure our newfound discovery about our ancestor.  We even gloat about the fact we believe we were meant to find their story despite the obvious odds, indeed we were right because if they want to be found, they will be!

ELLZA LIMES COLLAGE WITH SQUIRREL PHOTO AND STORY AND RIDGEWAY GARAGE